Published, Completed Amber Amburgey Published, Completed Amber Amburgey

Title: Patient-Reported Outcomes Following Sectioning of the Filum Terminale for Treatment of Tethered Cord Syndrome Associated with Ehlers-Danlos Syndrome

The purpose of this study was to determine the safety and efficacy of surgical release of the filum terminale (FT) for the treatment of tethered cord syndrome (TCS) in patients with hypermobile Ehlers-Danlos Syndrome (hEDS).

Thirty patients, all female, who were treated with surgical release by a single neurosurgeon completed surveys with items regarding pre- and postoperative symptoms, pain levels, and satisfaction. Surgical release of the FT was safe and effective in this cohort.

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INVESTIGATORS: Alissa Zingman MD (P.R.I.S.M. Spine and Joint, Bethesda MD); Kelly Tuchman (Metropolitan Neurosurgery Group, Bethesda MD); Fraser Henderson Sr MD (University of Maryland Capital Region Medical Center, Largo MD & Metropolitan Neurosurgery Group, Bethesda MD); and Clair A. Francomano MD (Indiana University School of Medicine, Indianapolis)

SUMMARY:

The purpose of this study was to determine the safety and efficacy of surgical release of the filum terminale (FT) for the treatment of tethered cord syndrome (TCS) in patients with hypermobile Ehlers-Danlos Syndrome (hEDS).

Thirty patients, all female, who were treated with surgical release by a single neurosurgeon completed surveys with items regarding pre- and postoperative symptoms, pain levels, and satisfaction. Surgical release of the FT was safe and effective in this cohort.

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